Team Super Cooper_Expired

Team Super Cooper

Hi, My name is Cooper and I am Super Orsum.
I have Trisomy 13 Mosaic or Patau Syndrome, which is an extremely rare Chromosome Abnormality. Only 5% of children born with this survive past their 1st birthday and I turned 8 in March!!! Because I am so rare we have no idea what challenges we may face in the future. What we do know is that we will tackle them head on with the support of friends, family, supporters and sponsors.
Please share my journey with me as I overcome obstacles both physically and mentally and try to fit into society like everyone else.

I arrived into the world with my (twin) brother Kase in March 2005. I also have a big brother Mason who is thirteen and loves me to bits.
Fairly early on (3-4 months) my mum knew there was something wrong with me as I was in and out of hospital all the time with different problems and not feeding. Everyone told her to stop comparing the twins but she didn’t accept this.
Luckily one day while in hospital we met a lady who requested genetic testing because of my ears being very low and toes being a bit dodgy. It was after a VERY long wait that we discovered I was in fact a little miracle.

I have had various operations for my kidneys, toes etc and we have to keep checking every year on my heart, lungs, kidneys, spine  to name a few. These tests are pretty expensive and my family receive no government funding.
I have very poor muscle tone which means it takes me twice as much effort and twice as much time to do what others find easy. I can’t hold a pen very well and even though I speak, not a lot of people can understand me. So we have to use Private Speech and Occupation Therapies each week which are very expensive.

I attend Inclusion Soccer in the weekend, Riding for the Disabled and Gymnastics. I also go to school and I just LOVE it. I have so many friends there.  I spent 2 years in prep. My mum says it’s because I wasn’t ready to move to Grade 1 but the real reason is I loved my prep teacher too much. This year I went to Year 2 and it has been very challenging for me. Because of my condition I struggle with not only the physical challenges but the developmental problems as well. My brain doesn’t work as well as it should. This is why I go to the Special Unit at my school where there are lots of very special ladies that help me.

I am absolutely adorable and people tell me that all the time. Of course I agree.  I love playing on the trampoline and doing all the things boys love to do.
I give EVERYTHING a go with 200% effort and refuse to be told I can’t do something.

If you would like to be on my team and help my family and I on our journey please either:

• Visit my facebook page. facebook.com/SuperCooperTri13
• Join my Super Hero Friends on the Brisbane Riverwalk. We will be ORSUM.
• Fundraise on behalf of Super Cooper - My mum will give you any tools you need. She’s good like that.

Email: super.cooper13@hotmail.com
Phone my mum Tanya 0404080240
Or Donate NOW Please

All the funds raised will be used to continue my ongoing medical bills, therapies and visiting specialists.

All donations of $2 or more are tax deductible and you will not receive any additional credit card charges. Super Cooper will receive 90% of all funds raised. The balance will go to the charity to cover administration expenses.

Thank you so much for reading my story. All donations are REALLY appreciated and will be put to great use.